Sickle Cell Clinical Research and Intervention Program (SCCRIP): A lifespan cohort study for sickle cell disease progression from the pediatric stage into adulthood.

JS, Hankins; JH, Estepp; JR, Hodges; MA, Villavicencio; LL, Robison; MJ, Weiss; G, Kang; JE, Schreiber; JS, Porter; SC, Kaste; KL, Saving; PC, Bryant; JE, Deyo; KA, Nottage; AA, King; AM, Brandow; JD, Lebensburger; O, Adesina; ST, Chou; BS, Zemel; MP, Smeltzer; WC, Wang; JG, Gurney

doi:10.1002/pbc.27228

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Sickle Cell Clinical Research and Intervention Program (SCCRIP): A lifespan cohort study for sickle cell disease progression from the pediatric stage into adulthood.

Shared by NobleBlocks on May 24, 2018 • 12:00 AM UTC

Authors:

Hankins JS

Estepp JH

Hodges JR

Abstract

Background Previous natural history studies have advanced the understanding of sickle cell disease (SCD), but generally have not included sufficient lifespan data or investigation of the role of genetics in clinical outcomes, and have often occurred before the widespread use of disease-modifying the...

Subject

Natural history

Disease-modifying Therapy

Sickle Cell Anemia

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