The European IPF registry (eurIPFreg): baseline characteristics and survival of patients with idiopathic pulmonary fibrosis.

Andreas, Guenther,; Ekaterina, Krauss,; Silke, Tello,; Jasmin, Wagner,; Bettina, Paul,; Stefan, Kuhn,; Olga, Maurer,; Sabine, Heinemann,; Ulrich, Costabel,; María Asunción Nieto, Barbero,; Veronika, Müller,; Philippe, Bonniaud,; Carlo, Vancheri,; Athol, Wells,; Martina, Vasakova,; Alberto, Pesci,; Matteo, Sofia,; Walter, Klepetko,; Werner, Seeger,; Fotios, Drakopanagiotakis,; Bruno, Crestani,

doi:10.1186/s12931-018-0845-5

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The European IPF registry (eurIPFreg): baseline characteristics and survival of patients with idiopathic pulmonary fibrosis.

Published in Respiratory research • Jul 28, 2018

Authors:

Guenther, Andreas

Krauss, Ekaterina

Tello, Silke

Abstract

BACKGROUND: Since 2009, IPF patients across Europe are recruited into the eurIPFreg, providing epidemiological data and biomaterials for translational research. METHODS: The registry data are based on patient and physician baseline and follow-up questionnaires, comprising 1700 parameters. The mid- t...

Subject

European registry for idiopathic pulmonary fibrosis (eurIPFreg)

Idiopathic pulmonary fibrosis (IPF)

Interstitial lung diseases (ILD)

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