Clinical audit research and evaluation of motor neuron disease (CARE-MND): a national electronic platform for prospective, longitudinal monitoring of MND in Scotland

Leighton, Danielle; Newton, Judith; Colville, Shuna; Bethell, Andrew; Craig, Gillian; Cunningham, Laura; Flett, Moira; Fraser, Dianne; Hatrick, Janice; Lennox, Helen; Marshall, Laura; McAleer, Dympna; McEleney, Alison; Millar, Kitty; Silver, Ann; Stephenson, Laura; D. Stewart, Susan; Storey, Dorothy; Stott, Gill; A. Thornton, Carol; Webber, Carolyn; Gordon, H.; Melchiorre, Giulia; Sherlock, Laura; Beswick, Emily; Buchanan, David; Abrahams, Sharon; Bateman, Anthony; Preston, Jenny; W. Duncan, Callum; Davenport, Richard; Gorrie, George; Morrison, Ian; Swingler, Robert; Chandran, Siddharthan; Pal, Suvankar

doi:10.1080/21678421.2019.1582673

Public

Clinical audit research and evaluation of motor neuron disease (CARE-MND): a national electronic platform for prospective, longitudinal monitoring of MND in Scotland

Published in Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration • Mar 20, 2019

Authors:

Danielle Leighton

Judith Newton

Shuna Colville

Abstract

Objectives: Launched in 1989, the Scottish Motor Neuron Disease Register (SMNDR) has provided a resource for prospective clinical data collection. However, in 2015 we aimed to evolve a system to allow: i) A patient-centered approach to care based on recognized standards, ii) Harmonized data sharing ...

Subject

Audit

Nice

Observational study

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