Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence

Kalkman, Shona; van Delden, Johannes; Banerjee, Amitava; Tyl, Benoît; Mostert, Menno; J. M. W. van Thiel, Ghislaine

doi:10.1136/medethics-2019-105651

Public

Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence

Published in Journal of Medical Ethics • Nov 12, 2019

Authors:

Shona Kalkman

Johannes van Delden

Amitava Banerjee

Abstract

INTRODUCTION: International sharing of health data opens the door to the study of the so-called 'Big Data', which holds great promise for improving patient-centred care. Failure of recent data sharing initiatives indicates an urgent need to invest in societal trust in researchers and institutions. K...

Subject

Data sharing

Confidentiality

Public relations

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