Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis

Schickhardt, Christoph; Fleischer, H.; C. Winkler, Eva

doi:10.1186/s12910-020-0446-y

Public

Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis

Published in BMC Medical Ethics • Jan 16, 2020

Authors:

Christoph Schickhardt

H. Fleischer

Eva C. Winkler

Abstract

BACKGROUND: As Next Generation Sequencing technologies are increasingly implemented in biomedical research and (translational) care, the number of study participants and patients who ask for release of their genomic raw data is set to increase. This raises the question whether research participants ...

Subject

Raw data

Philosophy of medicine

Context (archaeology)

Research Assistant

AI chat, annotations, notes & similar papers

Finding related papers...

Discussions

(0)

No comments yet

Be the first to share your thoughts!