Impact of sickle cell disease on patientsʼ daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey ( SWAY )

Osunkwo, Ifeyinwa; Andemariam, Biree; P. Minniti, Caterina; Inusa, Baba; El Rassi, Fuad; Francis‐Gibson, Beverley; Nero, Alecia; Trimnell, Cassandra; R. Abboud, Miguel; Arlet, Jean‐Benoît; Colombatti, Raffaella; de Montalembert, Mariane; Jain, Suman; Jastaniah, Wasil; Nur, Erfan; Pita, Marimilia; DeBonnett, Laurie; Ramscar, Nicholas; Bailey, Tom; Rajkovic‐Hooley, Olivera; S James, John

doi:10.1002/ajh.26063

Public

Impact of sickle cell disease on patientsʼ daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey ( SWAY )

Published in American Journal of Hematology • Dec 2, 2020

Authors:

Ifeyinwa Osunkwo

Biree Andemariam

Caterina P. Minniti

Abstract

Sickle cell disease (SCD) is a genetic disorder, characterized by hemolytic anemia and vaso-occlusive crises (VOCs). Data on the global SCD impact on quality of life (QoL) from the patient viewpoint are limited. The international Sickle Cell World Assessment Survey (SWAY) aimed to provide insights i...

Subject

Interquartile range

Medicine

Quality of life (healthcare)

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