GA4GH: International policies and standards for data sharing across genomic research and healthcare

L. Rehm, Heidi; Page, Angela; Smith, Lindsay; Adams, Jeremy; Alterovitz, Gil; Babb, Lawrence; P. Barkley, Maxmillian; Baudis, Michael; J. S. Beauvais, Michael; Beck, Tim; Beckmann, J.; Beltrán, Sergi; L. Bernick, David; Bernier, Alexander; Bonfield, James; Boughtwood, Tiffany; Bourque, Guillaume; R. Bowers, Sarion; J. Brookes, Anthony; Brudno, Michael; Brush, Matthew; Bujold, David; Burdett, Tony; J. Buske, Orion; N. Cabili, Moran; Cameron, Daniel; J. Carroll, Robert; Casas-Silva, Esmeralda; Chakravarty, Debyani; P. Chaudhari, Bimal; Hui Chen, Shu; Michael Cherry, J.; Chung, Justina; Cline, Melissa; Clissold, Hayley; Cook‐Deegan, Robert; Courtot, Mélanie; Cunningham, Fiona; Cupak, Miro; M. Davies, Robert; Denisko, Danielle; Doerr, Megan; Dolman, Lena; S. Dove, Edward; Jonathan Dursi, Lewis; O. M. Dyke, Stephanie; A. Eddy, James; Eilbeck, Karen; Ellrott, Kyle; Fairley, Susan; A. Fakhro, Khalid; V. Firth, Helen; Fitzsimons, Michael; Fiume, Marc; Flicek, Paul; Fore, Ian; Freeberg, Mallory; R. Freimuth, Robert; A. Fromont, Lauren; Fuerth, Jonathan; Gaff, Clara; Gan, Weiniu; M. Ghanaim, Elena; Glazer, David; C. Green, Robert; Griffith, Malachi; L. Griffith, Obi; L. Grossman, Robert; Groza, Tudor; M. Guidry Auvil, Jaime; Guigó, Roderic; Gupta, Dipayan; Haendel, Melissa; Hamosh, Ada; Hansen, David; K. Hart, Reece; M. Hartley, Dean; Haussler, David; Hendricks‐Sturrup, Rachele; Wai-Loon Ho, Calvin; E. Hobb, Ashley; M. Hoffman, Michael; Hofmann, Oliver; Holub, Petr; Shujui Hsu, Jacob; Hubaux, Jean‐Pierre; Hunt, Sarah; Husami, Ammar; O.B. Jacobsen, Julius; S. Jamuar, Saumya; Janes, Elizabeth; Jeanson, Francis; Jené, Aina; L. Johns, Amber; Joly, Yann; J.M. Jones, Steven; Kanitz, Alexander; Kato, Yoshihiro; Keane, Thomas; Kekesi-Lafrance, Kristina; Kelleher, Jerome; Kerry, Giselle; Khor, Seik‐Soon; Maria Knoppers, Bartha; Konopko, Melissa; Kosaki, Kenjiro; Kuba, Martin; Lawson, Jonathan; Leinonen, Rasko; Li, Stephanie; Lin, Michael; Lindén, Mikael; Liu, Xianglin; Liyanage, Isuru; Lopez, Javier; Lucassen, Anneke; Lukowski, Michael; Mann, Alice; Marshall, John; Mattioni, Michele; Metke‐Jimenez, Alejandro; Middleton, Anna; Milne, Richard; Molnár‐Gábor, Fruzsina; Mulder, Nicola; Muñoz-Torres, Mónica; Nag, Rishi; Nakagawa, Hidewaki; Nasir, Jamal; Navarro, Arcadi; Nelson, Tristan; Niewielska, Ania; Nisselle, Amy; Niu, Jeffrey; Nyrönen, Tommi; D. O’Connor, Brian; Oesterle, Sabine; Ogishima, Soichi; Ota Wang, Vivian; A.D. Paglione, Laura; Palumbo, Emilio; Parkinson, Helen; Philippakis, Anthony; Pizarro, Angel; Prlić, Andreas; Rambla, Jordi; Rendon, Augusto; Rider, Renee; N. Robinson, Peter; W. Rodarmer, Kurt; Lyman Rodriguez, Laura; F. Rubin, Alan; Rueda, Manuel; A. Rushton, Gregory; Ryan, Rosalyn; Saunders, Gary; Schuilenburg, Helen; Schwede, Torsten; Scollen, Serena; Senf, Alexander; C. Sheffield, Nathan; Skantharajah, Neerjah; V. Smith, Albert; J. Sofia, Heidi; Spalding, Dylan; B. Spurdle, Amanda; Stark, Zornitza; Stein, Lincoln; Suematsu, Makoto; Tan, Patrick; Tedds, Jonathan; Thomson, Alastair; Thorogood, Adrian; L. Tickle, Timothy; Tokunaga, Katsushi; Törnroos, Juha; Torrents, David; Upchurch, Sean; Valencia, Alfonso; Valls Guimerà, Roman; Vamathevan, Jessica; Varma, S.D.; F. Vears, Danya; Viner, Coby; Voisin, Craig; H. Wagner, Alex; Wallace, Susan; Walsh, Brian; S. Williams, Marc; C. Winkler, Eva; Wold, B; M. Wood, Grant; Woolley, Jessica; Yamasaki, Chisato; Yates, Andrew; K. Yung, Christina; Zass, Lyndon; Zaytseva, Ksenia; Zhang, Junjun; Goodhand, Peter; N. North, Kathryn; Birney, Ewan

doi:10.1016/j.xgen.2021.100029

Public

GA4GH: International policies and standards for data sharing across genomic research and healthcare

Published in Cell Genomics • Nov 1, 2021

Authors:

Heidi L. Rehm

Angela Page

Lindsay Smith

Abstract

The Global Alliance for Genomics and Health (GA4GH) aims to accelerate biomedical advances by enabling the responsible sharing of clinical and genomic data through both harmonized data aggregation and federated approaches. The decreasing cost of genomic sequencing (along with other genome-wide molec...

Subject

Interoperability

Data sharing

Suite

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