Development of a patient journey map for people living with cervical dystonia

Benson, Monika; Albanese, Alberto; P. Bhatia, Kailash; Cavillon, Pascale; Cuffe, Lorraine; König, Kathrin; Reinhard, Carola; Graeßner, Holm

doi:10.1186/s13023-022-02270-4

Public

Development of a patient journey map for people living with cervical dystonia

Published in Orphanet Journal of Rare Diseases • Mar 21, 2022

Authors:

Monika Benson

Alberto Albanese

Kailash P. Bhatia

Abstract

BACKGROUND: Patient journey maps are increasingly used as a tool that enables healthcare providers to refine their service provision to best meet patient needs. We developed a cervical dystonia patient journey map (CDPJM) that describes the holistic patient experience from pre-diagnosis through to l...

Subject

Medicine

Focus group

Cervical dystonia

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