Health-related quality of life of children with neurofibromatosis type 1: Analysis of proxy-rated PedsQL and CHQ questionnaires

A. E. Dhaenens, Britt; B. Rietman, André; Husson, Olga; Oostenbrink, Rianne

doi:10.1016/j.ejpn.2023.05.010

Public

Health-related quality of life of children with neurofibromatosis type 1: Analysis of proxy-rated PedsQL and CHQ questionnaires

Published in European Journal of Paediatric Neurology • May 31, 2023

Authors:

Britt A. E. Dhaenens

André B. Rietman

Olga Husson

Abstract

This study aims to (1) investigate health-related quality of life (HRQoL) in children with Neurofibromatosis Type 1 (NF1) using the Pediatric Quality of Life inventory (PedsQL) and the Child Health Questionnaire (CHQ); and (2) compare the psychometric properties and content of these questionnaires i...

Subject

Cronbach's alpha

Quality of life (healthcare)

Psychosocial

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